Daily check in April 21, 2018

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SandiSAHM
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Re: Daily check in April 21, 2018

Post by SandiSAHM » Sat Apr 21, 2018 8:49 pm

MackerelCat wrote:
Sat Apr 21, 2018 7:58 pm
The med has some wacky side effects that are hard to get used to. It lowers magnesium and potassium in the body and leaves me feeling weak and tired. I get out of breath walking up one flight of stairs, and I have to go up and down all day at work! Since the alternative is going blind, I just suck it up and deal.
Will they put you on supplements? Low potassium can cause all kinds of other problems (magnesium probably can, too, but potassium is the only one I've ever had to research).

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MackerelCat
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Re: Daily check in April 21, 2018

Post by MackerelCat » Sat Apr 21, 2018 8:53 pm

Sandy, at higher doses, supplements have to be prescribed. So we'll see. I go bsck for another check up in a month, and will ask then.
Mackie

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Jackielou
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Re: Daily check in April 21, 2018

Post by Jackielou » Sat Apr 21, 2018 11:36 pm

Mackie, I am so glad that you have finally gotten a diagnosis.

rinty
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Re: Daily check in April 21, 2018

Post by rinty » Sun Apr 22, 2018 3:19 am

MackerelCat wrote:
Sat Apr 21, 2018 8:53 pm
Sandy, at higher doses, supplements have to be prescribed. So we'll see. I go bsck for another check up in a month, and will ask then.
Oh, Mackie, ((((hugs)))), so glad you do finally have a diagnosis but a very harsh one. Hopefully you have been given the best treatment they can offer. It must have been exhausting waiting this long. You need to rest to get your head round this, never mind how the meds are effecting you. (((hugs))) again, all the best x

dlrcpa
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Re: Daily check in April 21, 2018

Post by dlrcpa » Sun Apr 22, 2018 7:44 am

Mackie, also glad that you have a diagnosis and a plan. You're probably exhausted from past several months of pain as well. Hopefully the side effects resolve or improve quickly.

alliesmama4
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Re: Daily check in April 21, 2018

Post by alliesmama4 » Sun Apr 22, 2018 10:08 am

MackerelCat wrote:
Sat Apr 21, 2018 7:58 pm
Hi, frugal ones. Sorry for not checking in lately. Work has been crazy.

However, on Monday I finally got a diagnosis of idiopathic intercranial hypertension from the neuro-opthalmologist, who did the most in-depth eye exam ever. Only about 1 in 100,000 people have it. The doc thinks my case may be intermittent since I sometimes had days without a severe headache.

It is being treated with a medication that acts on the enzyme the controls cerebral spinal fluid production. The med has some wacky side effects that are hard to get used to. It lowers magnesium and potassium in the body and leaves me feeling weak and tired. I get out of breath walking up one flight of stairs, and I have to go up and down all day at work! Since the alternative is going blind, I just suck it up and deal.

I have lost a little vision, including some color vision in my right eye, but will be okay if things do not progress. The med began working right away, as the severe headache and vision disturbances that started in February began abating by Wednesday.
Mackie Glad you finally have a diagnosis and a treatment. My Dr had me eat a large banana every day for low potassium problems due to medication. Not sure if that will help you? I do wish you the very best in getting better and staying at the same level with your eye site. Hopefully you will feel less tired as your body acclimates to the medicine. So glad that you are finally getting relief from your headaches. (( hugs)). Janet Alliesmama
Janet Alliesmama

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